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Prevalence: A term used by epidemiologists (scientists who study diseases in populations) to describe how often a disorder occurs in a population. For genetic disorders such as OI, prevalence refers to the number of cases in a specified population at a designated time. The question, "How many people in the United States today have OI?" is asking about the prevalence of OI.

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The Brittle Bone Disorders Consortium (BBDC) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). BBDC is funded under grant number U54AR068069 as a collaboration between NCATS, the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), the National Institute of Mental Health (NIMH), and the National Institute of Dental and Craniofacial Research (NIDCR). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke (NINDS) under grant number TR002818. The content of this website is solely the responsibility of the BBDC administrative coordinating center at Baylor College of Medicine and does not necessarily represent the official views of the NIH.

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