Latest News

Rare Research Report: September 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research below.Jump to:

Rare Research Report: May 2024

May 29 2024

Rare Research Report: April 2024

April 24 2024

Rare Research Report: March 2024

March 22 2024

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16 2024

Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13 2024

Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Rare Research Report: October 2023

October 17 2023

Osteogenesis Imperfecta Over Time: What We’re Learning from a Natural History Study

September 22 2023

Rare Research Report: March 2023

March 20 2023