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An NIH-Funded Rare Diseases Clinical Research Network Consortium

Latest News

Rare Research Report: December 2022

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research. 

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Training Program for Clinical Research in Rare Disease Launches New Session

November 9 2022

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Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

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Three icons featuring a trio of silhouettes, a chemistry flask and stethoscope, and a contact card appear next to the text, Join Our Contact Registry - Learn about opportunities to participate in our research, receive information about our work, connect with our consortia and patient advocacy groups. rdcrn.org/registry appears next to the Rare Diseases Clinical Research Network logo

New Consortium Spotlight Articles Offer Look Inside Rare Diseases Research

November 22 2021

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Patient Spotlight: Fynan Family Fueled by OI Research

November 17 2021

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Michelle Fynan, PhD, LMHC

Early-Stage Investigator Spotlight: Chaya Nautiyal Murali Gets Creative with Osteogenesis Imperfecta Research

November 10 2021

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Chaya Nautiyal Murali, MD,

Consortium Spotlight: Advancing Discoveries in Brittle Bone Disorders

November 3 2021

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Brendan Lee, MD, PhD,

RDCRN Research Roundup: October 2021

October 5 2021

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Research Roundup. #RareDiseasesSpotlight. Rare Diseases Clinical Research Network

Higher Levels of Collagen X with Lower Growth Velocity May Reflect Growth Plate Dysfunction in Osteogenesis Imperfecta

August 12 2021

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The Brittle Bone Disorders Consortium (BBDC) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). BBDC is funded under grant number U54AR068069 as a collaboration between NCATS, the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), the National Institute of Mental Health (NIMH), and the National Institute of Dental and Craniofacial Research (NIDCR). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke (NINDS) under grant number TR002818. The content of this website is solely the responsibility of the BBDC administrative coordinating center at Baylor College of Medicine and does not necessarily represent the official views of the NIH.

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