Latest News

Rare Research Report: August 2026

Each month, we share summaries of recent Rare Diseases Clinical Research Network grant-funded publications. Catch up on RDCRN research for August 2026.

Join the RDCRN for Rare Disease Day at NIH on February 27, 2026

February 16 2026

Rare Disease Day at NIH. February 27, 2026. #RDDNIH. ncats.nih.gov/rdd

Rare Research Report: January 2026

January 28 2026

NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

October 29 2025

Honeycomb-style infographic showing the structure of the Rare Diseases Clinical Research Network with consortia names

Rare Research Report: August 2025

August 26 2025

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

New Consortium Spotlight Articles Offer Look Inside Rare Diseases Research

November 22 2021

Patient Spotlight: Fynan Family Fueled by OI Research

November 17 2021

Early-Stage Investigator Spotlight: Chaya Nautiyal Murali Gets Creative with Osteogenesis Imperfecta Research

November 10 2021